Communications Lead

About the Role

We are looking for a creative, organised and strategic Social Media and Communications person to lead and deliver engaging communications across digital and traditional channels. The successful candidate will be responsible for developing compelling content, managing social media platforms, increasing audience engagement, and ensuring consistent m essaging across all communications.

This role is ideal for someone who is passionate about storytelling, understands how to grow online communities, and can confidently manage communications campaigns that support organisational objectives

We are looking for a warm and proactive members of staff to help us deepen and expand relationships with our members and supporters. This role is central to building a sustainable income base that allows EDS UK to continue providing vital support, information and advocacy for people living with EDS and HSD.

As part of a small team, you ll enjoy a varied role that blends hands strategic thinking. You ll lead on our communications , grow on delivery with followers , and ensure every supporter feels valued, understood and connected to our mission. You ll bring empathy, clarity and creativity to supporter communications, recognising the diverse needs of our community.

This is a fantastic opportunity for someone who wants to make a tangible difference every day and help shape the future of EDS UK s member experience.

Key responsibilities

Social Media Management

• Develop and implement a social media strategy aligned with organisational goals.

• Manage day to day activity across all social media channels including Facebook, Instagram, LinkedIn, TikTok and YouTube

• Create engaging, accessible and audience , but not limited focused content including graphics, videos, reels, stories and written posts.

• Schedule and publish content using social media management tools.

• Monitor engagement, respond to comments and messages, and build positive online communities.

• Track trends, emerging platforms and digital opportunities.

• Monitor analytics and prepare monthly performance reports with recommendations.

Communications

• Develop and deliver internal and external communications campaigns by writing and editing high quality content.

• Ensure all communications reflect the organisation s tone of voice and brand identity.

• Support awareness campaigns, fundraising initiatives, events and service promotion.

• Manage media enquiries and assist with public relations opportunities.

• Coordinate communication plans for campaigns, launches and events.

Website and Digital Content

• Maintain , map and update website content on our CMS to ensure information is accurate and engaging.

• Support SEO and AI and digital marketing activity to improve reach and visibility.

• Work with designers, external suppliers or internal teams to create multimedia content.

• Keeping the database s clean and up to date including Mailchimp and CMS

Brand and Audience Engagement

• Maintain brand consistency across all communications.

• Build relationships with stakeholders, supporters, partners and influencers.

• Identify opportunities to grow audiences and increase engagement.

• Promote inclusive and accessible communication practices.

Monitoring and Evaluation

• Analyse campaign and social media performance using analytics tools.

• Produce reports demonstrating impact, engagement and growth.

• Use insights and data to improve future communications activity.

Collaboration and Representation

• Represent the charity at occasional events, meetings or online sessions.

• Contribute to a positive, collaborative culture within a small team.

• Undertake any other reasonable request from the requirements of the role. Head of Services to fulfil the requirements of the role.

Person Specification

Experience and Knowledge

Proven experience managing social media platforms for an organisation or brand.

• Strong copywriting, editing and storytelling skills.

• Experience creating digital content including graphics and short form video.

• Excellent understanding of social media trends, analytics and best practice.

• Experience using scheduling and analytics platforms.

• Strong organisational skills with the ability to manage multiple projects.

• Excellent communication and interpersonal skills.

• Ability to work independently and collaboratively.

• Good understanding of brand management and audience engagement.

• Experience working within the charity, healthcare or non profit sector.

• Knowledge of accessibility standards and inclusive communications.

• Experience with Canva, Adobe Creative Suite or video editing tools.

• Experience managing paid social campaigns.

• Understanding of AI, SEO and email marketing platforms.

• Experience of using wordpress or other CMS

Skills and Attributes

Strong organisational and strategic skills, with attention to detail.

• Excellent written and verbal communication skills, with the ability to motivate and inspire through content.

• Creative and proactive.

• Empathetic and audience focused

• Highly organised and detail oriented.

• Adaptable and solutions focused.

• Passionate about meaningful communications and community engagement.

• Ability to manage multiple tasks in a small, fast paced team.

• Ability to work independently and take ownership of projects.

• Comfortable working remotely with occasional travel to London.

• Flexibility in working hours some evenings and weekends may be required.

• A commitment to the policies and aims of EDS UK.

Please note that the successful candidate will be required to undergo a fully enhanced DBS check, prior to commencing employment with EDS UK.

Application process

Please send your CV, together with a covering letter outlining how your skills and experience meet the requirements of the role .

We are committed to creating an inclusive workplace where everyone feels valued and respected. We welcome applications from people of all backgrounds and experiences.

We reserve the right to close this vacancy early if we receive sufficient applications.